As some of you know my adorable son has a form of autism spectrum. Most people associate it with “Rain man” syndrome, but nothing is as complex and mysterious and this special way of living and see life. For those who enjoy a good book, I recommend to read ´ The Curious Incident of the Dog in the Night´ from Mark Haddon. Even if you have no knowledge or interest in the subject, this book will lead to a wonderful, complex but very logical world.
That is how I perceive it when I look at Gabriel other/and more then his mother. I will never see it has a handicap: he is the sweetest child, challenging and I have learn so much from him.
I KNEW he was special even before he was born, even though I had never carried a child before, it was clear to me that it was more then the feeling all first mothers get. The whole process was a miracle, the happiest 9 months of my life so far. Going back to PCOS, when you are told that you are “infertile” (which I was), from the moment you see that heartbeat until you see, touch and feel that life that is half of you, nothing else matters. And when you think you got to the top, you heart and soul only grows. You are vulnerable but feel like the strongest Being in the Universe.
Pretty soon I felt, that my special gift was more gifted then expected. You parent instinct takes over, no doctor, family member or friend can convince you otherwise. You even have a name for it, speaking it out load sounds like a curse, something freaky… Your perfect child, the most beautiful baby in the world has some flaw, and the guilt feeling of wishing it is not true (because you are then denying and rejecting who your child is) doesn’t make it any easier. No matter how prepared you think you are, when those words are spoken by a professional: you cry! But that child, that little person is the same as the a second before. One of the first things I wondered was: will he be happy? He was just as happy as the second before the official diagnose; he loved me just as much and his kiss wasjust as sweet.
That moment fades away, and then it’s time to get into a different mode. No, don’t hide from it if it is your son or daughter (3/4 are boys btw) or from your friends or sister. But the world didn’t change, you might think (yours) did, but it didn’t. The only thing that has changed is that you now know your child is indeed special. During 3 years (actually more) I read all I could find about it, and couldn’t help feeling overwhelmed and helpless. The pre and post natal hormones change were bad and unexpected enough: How can I be good and strong enough for my son? Simple: You just ARE! It isn’t something to feel sorry about, and you will be just as a good parent. For those who suspect or just found out about your child condition: THIS is why I wrote this segment. Stop blaming yourself, looking for answers: yes, you took your vitamins, did everything the doctor told, didn’t drink o smoke during the pregnancy. There is just NO answer that will make you feel better about yourself or anything.
Now the real work starts: how to “control” the fixations, keep the communication or/and start it; how to teach, connect. Love isn’t just enough. Time to be practical! If you are just starting, rule number one: consistency!! Your child MUST and NEEDS to know what is going to happen next. Routine gives your child a sense of security, he/she is LOGICAL above all so if something is different, unexpected, unusual it might lead to confusion , panic, resistance. For those with a communication delay, the use of images/pictures/pictograms is probably the best tool you have to stimulate verbal communication and lesser the conflict and gap between you and your child. Don’t be fooled, your child is very aware and extremely sensitive to your own moods. I often see my son as a mirror of myself: the echolalia (copying/repeating of what is seen and heard) can and will give you more information about his/her environment and the way your child perceives it.
My goal with this blog is my hope to give the word of hope and sense to just ONE person that needs it. This is the top of my iceberg. Thereis much more, and I invite you to get out of your shell and share you own experiences, knowledge. It is not my intention to make this subject something trivial; it is even more personal because it is a part of my son. When he gets sick I wish it was me…
Hugs, Love and Hola
Anabela aka Abbia